The study, "Unveiling the Unseen: Exploring Stigma in Stillbirth Care through Interdisciplinary Narratives," delves into the often-overlooked issue of stigma surrounding stillbirth care in hospital settings. Recognizing that discussing stigmatization can be challenging, this research seeks to capture and shed light on these experiences through the perspectives of healthcare professionals who have witnessed them.
This research employs qualitative methods to gather accounts from clinicians and interdisciplinary providers who have observed or encountered instances of stigma related to stillbirth care. By encouraging clinicians to recount their experiences, the study aims to provide an empathetic and nuanced understanding of how stigma manifests in healthcare delivery.
The findings of this study promise to contribute to a broader awareness of the issue, help healthcare institutions address and rectify stigmatization, and ultimately improve the quality of care and support provided to families affected by stillbirth. In doing so, it aims to foster a more compassionate and empathetic healthcare environment for all.
Duration of the Research
Your individual participation in this study will consist of completing a one-time online survey. This questionnaire will take approximately 20-30 minutes to complete, however, you should feel free to take as little or as much time as you feel might be necessary in order to respond to the questions.
Study Procedures
If you decide to take part in this study, here is what you can expect:
- Click on the link on the bottom right that says "Next" to begin questionnaire
- Follow the instructions on the screen to complete the questions on the survey
- The first section of the survey will ask you for some demographic information such as your age, gender, as well as some information on your role related to stillbirth care.
- The second part of the survey asks open ended questions related to your experiences with stigma and stillbirth.
- Completing the online survey implies your consent to participate in this study
Potential Risks and Benefits
This questionnaire will ask questions related to your experiences related to stigma and stillbirth and may cause minimal discomfort in relation to recollection of past experiences. However, the risk for discomfort is no higher than might be expected during clinical care. Results from this study have the potential to identify gaps that may exist in perinatal bereavement care. It also has benefit of providing information for those who create training programs and services that benefit patients and healthcare teams.
Participation Statement
Participation is voluntary. Refusal to participate will involve no penalty or loss of benefits to which you would otherwise be entitled. You may discontinue participation at any time without penalty or loss of benefits to which you would otherwise be entitled. Refusing to participate, or withdrawing from the study, will not affect your membership or participation in pregnancy-loss related activities or memberships, either now or in the future. You can decide to withdraw your consent and stop participating in the research at any time, without any penalty.
Alternatives to Participation in this Research
If you choose to not participate in this study, you will not be penalized or lose any benefits to which you would otherwise be entitled.
Compensation/Reimbursement
There is no compensation or reimbursement for participation in this study.
Confidentiality and Privacy
Every effort will be made to ensure your privacy and the confidentiality and security of your information. No identifiable data will be collected. All electronic data will be kept in a password-protected computer. Any results that may be published will not identify individual participants. Your name will not be reported in any publication or presentation of the results of this research study; only the data obtained as a result of your participation in this study will be made public.
Future Contact:
You will not be contacted in the future after your part in the study is over.
Conflict of Interest Notification
The research investigator does not have any conflicts of interest.
Questions, Comments or Concerns:
If you have any questions, comments or concerns about the research, you can talk to the following researcher:
If you have questions about your rights as a research participant, or you have comments or concerns that you would like to discuss with someone other than the researchers, please call the CUNY Research Compliance Administrator at 646-664-8918 or email HRPP@cuny.edu. Alternatively, you may write to:
CUNY Office of the Vice Chancellor for Research
Attn: Research Compliance Administrator
205 East 42nd Street
New York, NY 10017
There are 13 questions in this survey.
